I have had MS for over 40 years and I heard every one of those comments above and oh so many more. Of course everyone means well, even my sister who says that if I would just read the Bible every day and get myself saved by Jesus that I will be on my way to Heaven. Well, now wouldn’t that just be lovely! What I really wanted to say to her was fuck you! But of course I didn’t. Perhaps if she had said that to me in person and not over the telephone I would’ve been able to stab her in the heart… but of course I didn’t. I just thought about it afterwards.
And of course there was always the advice that comes from a complete stranger who knows someone with multiple sclerosis who is doing very well and that you can’t even tell that she’s sick. Of course this person knows nothing about the symptoms of MS but still cannot resist telling you how the friend of his second cousin’s son cured himself with the bee sting therapy. I’ve never tried the bee sting thing. And I don’t ever plan to purposefully get stung by an insect.
One of my best friends told me that I really should start to eat meat again even though I have not eaten beef or pork for at least 35 years. And the reason that I stopped in the first place was because I had read that cutting down on red meat was healthier for people with MS as well as for anyone in general. I changed my diet for my own good and I’m certainly not going to change it because someone else says that I need to put a little meat on my bones.
I have learned over the course of the years having a chronic disease to not pay attention to dingbats. It’s like cutting out fat. The more you do it the better you will feel. Why waste energy trying to get them to stop saying ridiculous things when all you have to do is to stop them in their tracks and tell them that you are doing your goddamn best and you don’t need them to tell you what to do. Tell them you have done enough research on the Internet to write a thesis to complete your doctorate and one of the things that you have learned is to not listen to people who irritate you or stress you out. let them know that that can exacerbate MS Believe me, they won’t know what an exacerbation is anyway. Fuck em!
Be sure to order your copy of Potty Mouth! It is a book that I have written as a memoir concerning my life living with multiple sclerosis. The subtitle reads a woman disabled with multiple sclerosis copes with life’s challenges with courage, wisdom and a profane sense of humor. If you are looking for an inspirational read this is a great book for you. I am very proud of this endeavor of mine and my goal is to help as many people as possible in the time that I am given on this Earth. You can find Potty Mouth on Amazon, Barnes & Noble, Author House, as an e-book and as a paperback. Thank you so much for looking!