10 Things That Will Make Life Easier for People with Disability

Imagehttp://www.thepottymouthbook.com

10 Things That Will Make Life Easier for People with Disability

I have been disabled with multiple sclerosis for 40 years and for seven of those years I have lived life in a wheelchair. I have adapted and adopted many different lifestyles in order to make my life more significant to the world and to myself. The list below are 10 things that I could not do without and that help me greatly to make my life as normal as possible. What is normal for me now would be a been unthinkable even 8years ago.

1.       Dragon naturally speaking voice recognition program. Since I am no longer able to type, thanks to this goddamn Multiple Sclerosis, and I am paralyzed on my left side I am using the voice recognition program for my computer every day when I write. It has saved me from untold angst, frustration and exhaustion. Having MS makes everything exhausting so something as wonderful as this program makes it fun again to do what I love. Of course, it makes some serious errors and sometimes refuses to curse for me. But what the hell, it’s a small price to pay.

2.      Ex N Flex These machines are really great for people who need to exercise their arms and legs and they are recommended by the Multiple Sclerosis Society. I use them every day and without them I would be at a loss. They have my highest kudos and their customer service is bar none.

3.      e-books I read a lot and before e-books I had a hard time holding books properly and drop them often. Because I have to spend quite a lot of time in bed because of MS and read tons of books and I am so thankful for this wildly successful adventure.

4.     e- reader There are so many kinds of readers on the market. I am using the Samsung Galaxy tablet. It’s just the right size for me to read in bed and has Internet features and lots of apps so if I need to look up something while I’m reading, the information is right there in my hands.

5.     Handy ride transportation system for people with disabilities  This wonderful program is based in Dallas, Texas and I don’t know what I would do without it. With my wheelchair I am no longer able to get in and out of our car and these wonderful handicapped accessible buses just lift me up or down the ramp and we’re off on another exciting adventure. Without it I would be stuck between a rock and a hard place.

6.     Invacare alternating air electric mattress About a year ago I was hospitalized for many months with a very serious bedsore. When I got home I bought an Invacare air mattress that is the same type that was used by Christopher Reeves. It automatically rotates my body from one side to the other every half an hour and I love it. No more sores.

7.      Life Alert Of all the good things that I’ve done to help myself, this is probably the greatest. It has saved me from countless injuries and the countless times that I have fallen I have had five or six gorgeous fireman pick me and put me back where I belong. This is the number one program you need to get if you find yourself in danger. Believe me you will thank me. It’s a wonderful system and could possibly save your life.

8.      Certified home health care aide Oh, happy day when my present home health care aide showed up at my door. It’s been a long and bumpy road to try and find someone who is kind, professional, and honest. I found her and I love her. If you need help start the process. It’s well worth it.

9.      Catheters Another stinky piece of business but what can you do. The catheter was invented by Benjamin Franklin when his brother was having trouble in the nether regions so we can thank our wonderful forefather for helping out. He would be proud to know what his grand invention has done for mankind. And I can attest to that fact.

10.  Bedside commode  My bathroom is small and my wheelchair is cumbersome so I decided enough is enough. There were several times when I had to be rescued by Life Alert and one time I actually broke a rib trying to get onto the toilet. I need help to get on and off the commode but Multiple Sclerosis affords us very little privacy. Embarrassment and humiliation are synonyms for MS. The alternative was just too awful to concede.

These are all steps that I took one at a time over the course of years and looking back on it now I see that each one of these 10 things has added a little more independence to my life and I hope to yours.

About a year and a half ago is when I first got the spark of an idea to write a book. It was an absolutely foreign idea that I could even do such a thing. And now, I have written and published the book Potty Mouth which will be ready by the end of May. I am so proud of myself having gone through a debilitating depression and thoughts of suicide to doing what I thought was impossible.

I invite you to take a look a look at the link below to get an idea about the book and the little more about me. Thank you so much. http://www.thepottymouthbook.com

 

 

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3 Responses to 10 Things That Will Make Life Easier for People with Disability

  1. lori says:

    Ms Pottymouth, I just read your last 2 articles. I wish you were local Id come give you a hug. I wonder when you were 1st diagnosed how you learned you had ms? Also, how long before you actually had to start using these 10 things? Should I prepare that I am going to need theses myself? I am full of questions.

  2. renaeclare says:

    hi Lori, thank you so much for your wonderful note. I was first diagnosed when I was 22 years old and had symptoms before that. I am now 60 years old and so it’s been a long journey with this mother—–er. Each of the 10 things I mentioned has been in the last six years. Before that I was using a walker. One day I fell and broke my ankle in three places and then spent the next eight months in the hospital for one thing and another. Since then I’ve been in a wheelchair and have had to accommodate my life with the 10 things mentioned.
    and no, Lori, you shouldn’t prepare yourself for the 10 things mentioned because all of our MS symptoms at different for each and every one of us. So just utilize the help that’s out there as you need to. My thoughts are with you and I hope you are doing well. Don’t let this god-awful disease ruin your life. Just do the best you can and the best way you know how.
    Renae

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